I had another post scheduled for today, but I couldn’t not acknowledge something that happened yesterday…many of you might remember a post I wrote a few months ago about Teddy Fish, a sweet amazing boy who was diagnosed with Menkes (i.e. kinky hair syndrome).
Well yesterday, he received his wings and went to Heaven to be with our Lord. (you can read his obituary here) I can’t begin to imagine what the Fish family is going through and I hope I never will, but I do know that even though their sweet boy was only on this Earth for a little more than a year, he changed a lot of people’s hearts, mine included.
From the moment I saw that infectious smile of his, I was captivated by him, his story, and what his friends and family were doing for Menkes awareness and research. I know there are millions of sick children in this world, but for some reason, I couldn’t get Teddy out of my mind and he will forever be an imprint to so many of us.
Last night, I sat in my kitchen as the girls and I ate dinner and just cried. Cried because we are so fortunate to have two healthy children, cried because I want to savor each and every moment with my sweet babies, and cried because I can’t understand why things happen the way they do sometimes. Jeff had been out to dinner with clients and when I told him about Teddy passing, he said that I had to remind myself that he was in a much better place and that God is taking care of him now.
I know these next few days, weeks, months, and years will be trying for Teddy’s parents/grandparents/friends/extended family, but I hope they know how many people are praying for them and praying for a cure for Menkes.
Thank you Mary and Alex for opening your hearts, and sharing that sweet sweet superhero with all of us…I am forever grateful and I promise you none of us will ever forget your sweet Teddy.
You can read more about Super Teddy and his story here.
My heart is so sad, there truly are no words. Sending so many prayers to Mary and Alex xo
So, so sad đ my thoughts and prayers are with the Fish family
I was in bed when I found out last night from Instagram and just cried for a solid 5 minutes. My heart is breaking for Mary and her husband.
My heart is so sad to learn of his passing. Prayers for all who knew and loved him.
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Sending prayers to this family, no one should ever have to go through the loss of a child. My heart aches for them.
Praying for this sweet family!!!
My heart was so, so sad to learn of his passing yesterday. What an incredible family there are. My heart aches for them. My thoughts and prayers go out their family.
My heart is breaking for this sweet family. Prayers and peace are with them.
So, so sad. My heart breaks for them so much. Will be keeping Mary, Alex & the whole family in my prayers.
So heartbreaking. Thank you for sharing Teddy's story. Many prayers for his family and friends.
I just saw this on IG this morning…so so sad. Can't hardly believe it just seeing his smiling face a couple days ago on IG. đ
Oh mercy…. how heartbreakingly sad đ
So sad, no parent should ever have to lay their angel to rest. May God watch over them in this difficult time.
This is absolutely devastating. I just found out about this precious family's journey through another blogger on Instagram today. Gave me chills and tears began to fall. Can't even imagine. Praying for strength, peace, and comfort for the Fish Family.
Beautiful Post. I'm praying for his family.
Love your heart, friend. I cried for them when hearing this news yesterday and I can't even being to fully comprehend what they are going through. So glad that his parents shared his life with us ……….. can't beat his sweet smile. Praying for peace for his family and that God will wrap them in his arms and cover them in love!
Thanks for sharing the news. I am deeply saddened to hear this!
I, too, just sat and cried about sweet Teddy. It hits way too close to home for me as Teddy is also an April 13' baby as is my Adeline. Teddy's family is only one town over from us. I just cannot imagine what they're all going through.
So sad but he his struggle is not in vain. I never knew what Menkes was (as I am sure a lot of other people didn't as well), I hope that more children can be saved with an early diagnosis thanks to Super Teddy. RIP sweet one.
My heart breaks for this family. đ
Natasha, you put so much what I feel into words. I write the night before bc for now I am on the west coast and trying to put a post together for tomorrow…I couldn't get that little babe out of my mind and still can't
Absolutely heartbreaking. A pain no parent should ever have to bear. May the find peace and comfort in the days to come. Praying for everyone who knew and loved him.
That is heartbreaking. My thoughts and prayers are with the family.
My heart is broken for this poor family. I'm holding my baby closer than ever these days. đ Praying.