I had another post scheduled for today, but I couldn’t not acknowledge something that happened yesterday…many of you might remember a post I wrote a few months ago about Teddy Fish, a sweet amazing boy who was diagnosed with Menkes (i.e. kinky hair syndrome).
Well yesterday, he received his wings and went to Heaven to be with our Lord. (you can read his obituary here) I can’t begin to imagine what the Fish family is going through and I hope I never will, but I do know that even though their sweet boy was only on this Earth for a little more than a year, he changed a lot of people’s hearts, mine included.
From the moment I saw that infectious smile of his, I was captivated by him, his story, and what his friends and family were doing for Menkes awareness and research. I know there are millions of sick children in this world, but for some reason, I couldn’t get Teddy out of my mind and he will forever be an imprint to so many of us.
Last night, I sat in my kitchen as the girls and I ate dinner and just cried. Cried because we are so fortunate to have two healthy children, cried because I want to savor each and every moment with my sweet babies, and cried because I can’t understand why things happen the way they do sometimes. Jeff had been out to dinner with clients and when I told him about Teddy passing, he said that I had to remind myself that he was in a much better place and that God is taking care of him now.
I know these next few days, weeks, months, and years will be trying for Teddy’s parents/grandparents/friends/extended family, but I hope they know how many people are praying for them and praying for a cure for Menkes.
Thank you Mary and Alex for opening your hearts, and sharing that sweet sweet superhero with all of us…I am forever grateful and I promise you none of us will ever forget your sweet Teddy.
You can read more about Super Teddy and his story here.